Muscular Dystrophy Association

In various countries, there are associations that have been specifically established to cater to the needs of patients who suffer from muscular dystrophy. These associations organise fund raising activities and often involve volunteers who help to run some of the programmes.

Examples of support that you can find at these associations are:

1. Medical Education Programme. This normally provides updated medical information on muscular dystrophy and teaches caregivers with therapy and home care skills.

2. Family Connects. Connecting with other families who share the same experiences so as to learn from one another. More experienced families are also able to support those who are still unfamiliar with caring for a family member who has been diagnosed with the disease.

3. Counselling. Helps family members and patients deal with grief, anger, uncertainties and depression.

4. Information, Resources and referrals. Serves as a knowledge repository on best practices and lastest information.

Some of the services provided by such associations also include education programmes specifically suited for patients, transportation services as well as subsidised medical equipment. Associations for Muscular Dystrophy serve the communities' specific needs and purposes. When one is suffering from muscular dystrophy, it is best for the family member and patient to join such an association to find the support and help that they need.